Family Caregiving in the New Normal

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future.This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment.A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care.
- Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers- Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades- Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives- Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models- Examines how existing efficacious models can more effectively reach and serve individual families

ForewordAlan B. Stevens and Rachael Watman1. Introduction: Family Caregiving in the New NormalJoseph E. Gaugler and Robert L. KaneSection I: Personal Perspectives: Caregiving in the New Normal2. Caregiving Roles Reversed: Becoming My Mother's MotherMichele H. Kimball3. Complexity and Opportunities in Caregiving: A Story of Holding On and Letting GoChristine W. Hartmann4. Caregiver Woes in the Medicare System: A Tale of Two PatientsJerald Winakur5. The Caregiving Crucible: Crisis and OpportunityEmily KearnsSection II: Threats to Family Caregiving in the United States6. Factors Affecting the Future of Family Caregiving in the United StatesRobyn I. Stone7. Chronic Illness Trends and the Challenges to Family Caregivers: Organizational and Health System BarriersJennifer L. Wolff and Barry J. Jacobs8. Informal Care and Economic StressorsCourtney Harold Van HoutvenSection III: Policy Considerations and Family Caregiving9. The Policy and Political Environment of Family Caregiving: A Glass Half FullDebra J. Lipson10. Help for Family Caregivers Available from Government Programs and PoliciesPamela Doty and Brenda SpillmanSection IV: A New Vision for Supporting Caregivers in the Future11. Translational Research on Caregiving: Missing Links in the Translation ProcessElaine Wethington and Louis D. Burgio12. Information Technology to Support Aging: Implications for CaregivingGeorge Demiris13. Supporting Caregivers of Older Adults in Making Decisions: Current Tools and Future DirectionsTetyana P. Shippee, Kathleen Rowan and Carrie Henning-Smith14. Person-Centered Approaches to CaregivingKaren I. Connor, Hilary C. Siebens and Joshua Chodosh15. The Impact of the Internet and Social Media on CaregivingKatherina Nikzad-Terhune, Keith A. Anderson and Lori La Bey16. The Escalating Complexity of Family Caregiving: Meeting the ChallengeSusan C. Reinhard and Lynn Friss Feinberg17. Caregivers as Therapeutic Agents in Dementia Care: The Context of Caregiving and the Evidence Base for InterventionsLaura N. Gitlin and Nancy HodgsonConclusion18. A Perfect Storm? The Future of Family CaregivingJoseph E. Gaugler and Robert L. Kane

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