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This is a unique book that provides a way for the life experiences of people living with Locked-In Syndrome (LiS) to be heard. It combines the personal experiences of those living locked-in, with the biomedical aspects of LiS.
Shannan Keen has a BA in Psychology and Philosophy, and a Neuroscience Masters from the Brain and Mind Research Institute, University of Sydney. In 2012, as part of her PhD, she founded, and continues to run, the Australian Register for Disorders of Consciousness (ARDoC) within the Brain Foundation. In 2022 she established the annual International Locked-in Syndrome Conference. In 2023 she launched the worldwide Locked-in Syndrome Community Forum on Facebook.
Preface: Shannan Keen. Chapter 1: An Introduction to Locked-in-Syndrome: Diagnosis, Care, and Outcomes Steven Laureys and Mohammad Hossein Khosravi. Chapter 2: Communication From Gestures to Gadgets James M. Brinton. Chapter 3: Brain-computer interfaces and the future of assistive communication David Moses. Chapter 4: "It Doesn't Bend That Way" Duncan R. Campling Chapter 5: Vicissitude Bram Harrison. Chapter 6: Locked out: A real-life story Dick van der Heijde. Chapter 7: I'm still here Ann Johnson. Chapter 8: The second life of Mario Bross Bénédicte Jullien. Chapter 9: Communication without speech Bex Kemp. Chapter 10: Piece Unique Nelleke Koeners and Axelle Herwyn. Chapter 11: Let's not make a whole cheese out of it Isabelle Lauberthe. Chapter 12: A brainstem stroke which led to Locked In Syndrome Wenche Loseth. Chapter 13: "Light at the end of the road" Paqui Villegas, translated by Fernando Vidal. Chapter 14: For a better life Julio Lopes Ribeiro. Chapter 15: Black Dog Dawn Faizey Webster. Chapter 16: Conclusion Shannan Keen.
