Patient Engagement

Patient-oriented approaches to healthcare management have been brought to the fore in recent years, yet this book underlines how even further change is needed in order to fully mobilise the experiential knowledge of patients, and ultimately improve our healthcare systems. With contributions from scholars and patients across the globe, this collection brings together a comprehensive overview of major achievements in patient engagement, analysing political, organizational and clinical contexts. By understanding the concept of care partnership, the authors explore how this patient revolution could transform, improve and innovate the ways in which care services are organized and delivered. Looking closely at the role of new technologies, this timely book will undoubtedly be of use to patients, managers and professionals within the healthcare industry, as well as those researching health policy and organization.

Marie-Pascale Pomey is a Full Professor in the Department of Health Management, Evaluation and Policy at the University of Montreal, Canada, where she is also Co-Director of the Office of Collaboration and Patient Partnership in the Faculty of Medicine. The Chair in technology and advanced modalities assessment at the University of Montreal Health Centre (CR-CHUM), Marie-Pascale's research focuses on the role that patients and their families play in transforming health systems. Jean-Louis Denis is Professor in the Department of Management, Evaluation and Health Policy, School of Public Health at the University of Montreal, Canada. He holds the Canada Research Chair on health system design and adaptation and is a researcher at CR-CHUM. Visiting Professor in the Department of Management at King's College London, UK, Jean-Louis is Co-Editor of Palgrave's Organizational Behaviour in Healthcare series. He is also an elected member of the Royal Society of Canada, Fellow of the Canadian Academy of Health Sciences, and Fellow of the UK Academy of Social Sciences. Vincent Dumez is Co-Director of the Office of Collaboration and Patient Partnership in the Faculty of Medicine at the University of Montreal, Canada, and previously studied at HEC Montreal. Living with three chronic diseases for over three decades, and thus a significant user of healthcare services, Vincent has been actively involved in developing the concept of Patient Partnership.

1. Introduction; Marie-Pascale Pomey, Nathalie Clavel and Jean-Louis Denis.- 2. From Medical Paternalism to Care Parnerships: A Logical Evolution Over Several Decades; Vincent Dumez and Marie-Pascale Pomey.- 3. The Participation of Patients and Relatives in Quebec's Health System: The Montréal Model; Marie-Pascale Pomey, Vincent Dumez, Antoine Boivin, Ghislaine Rouly, Paule Lebel, Alexandre Berkesse, Annie Descoteaux, Mathieu Jackson, Philippe Karazivan and Nathalie Clavel.- 4. Implementing Patient and Carer Participation in Self-care and Co-care in Sweden: Policy, Practice and the Future of Person-centred Care; John Øvreteit and Eskil Degsell.- 5.Patient and Family Engagement in the United States: A Social Movement from Patient to Advocate to Partner; Maureen Maurer, Pam Dardess and Tara Bristol-Rouse.- 6. Connections: The Power of Learning Together to Improve Healthcare in the United Kingdom; Rachel Matthews, Stuart Green, Rowan Myron, Catherine French, Susan Barber, DionneMatthew, Sandra Jayacodi, Jenny Trite, Adrian Brown, Justin Baker, Howard Bluston, Ron Grant, Jean Straus, Richard Melville Ballerand, Maurice Hoffman, Fran Husson, Laura Fischer and Cherelle Augustine.- 7. Partnering with Patients for Change and Improvement: An Australian Perspective; Jeffrey Braithwaite, Kate Churruca, Leanne Wells, Frances Rapport, Tony Lawson, Paula Arro and Jo Watson.- 8. The Engagement Connundrum of French Users; Véronique Ghadi, Luigi Flora, Pascal Jarno and Hélyette Lelievre.- 9. Expert by Experience: Valuing Patient Engagement in Healthcare; Yann Le Cam and Matthew Bolz-Johnson.- 10. Discussion and Conclusion; Marie-Pascale Pomey.- 11. Future Directions for Patient Knowledge: A Citizen-patient Reflection; Carolyn Canfield.