Advances in Family Caregiving Policy and Research

How can public policy support the growing population providing unpaid care to people with disabilities, older people, or people with dementia, and what are the policy implications of the growing need for caregivers? This book presents a variety of perspectives on this topic, ranging from policies enabling caregivers to remain in the workforce to the impact of caregiving support on the utilization of healthcare and other services. More and more people across the globe are becoming family caregivers: they are providing unpaid care to a loved one who is perhaps chronically ill, has a disability, or has dementia. This responsibility can affect the health and wellbeing of not only the person receiving care, but also the caregiver. While the physical, emotional, and financial consequences of caregiving are receiving growing attention, less attention is paid to the policies that aim to mitigate those impacts, as well as the broader policy implications of this increasing population of caregivers. This volume was inspired by the need to highlight this growing body of research, addressing topics that range from strategies enabling caregivers to remain in the workforce to the impact of caregiving support on the utilization of healthcare and other services. Given the important role that family caregivers play in improving the lives of people needing care, it is critical that the policies that impact their ability to do so be understood and examined. This book was originally published as a special issue of the Journal of Aging & Social Policy.

Pamela Nadash is Professor in the Department of Gerontology and Fellow in the Gerontology Institute at the Donna M. and Robert J. Manning College of Nursing and Health Sciences at the University of Massachusetts Boston, USA. Her research centers on policies that enable people with long-term care needs to live in the community. One model of special interest is managed long-term care; she has also been heavily involved in consumer-directed services. Dr. Nadash is a Fellow of the Gerontological Society of America and Book Review Editor of the Journal of Aging & Social Policy. She serves as a Leadership Council Member at the National Consumer Voice for Quality Long-Term Care, a leading national organization advocating on behalf of people needing long-term services and supports (LTSS), and as Co-Chair of the Long-Term Care Discussion Group, which holds monthly meetings featuring topics in LTSS. Edward Alan Miller is Professor and Chair in the Department of Gerontology and Fellow in the Gerontology Institute at the Donna M. and Robert J. Manning College of Nursing and Health Sciences at the University of Massachusetts Boston, USA, and Adjunct Professor of Health Services, Policy and Practice at the School of Public Health, Brown University, Providence, USA. His research focuses on understanding the determinants and effects of public policies and practices affecting older adults in need of long-term services and supports. He is the author/co-author/editor/co-editor of more than 155 journal articles, 22 book chapters, and 9 books. Dr. Miller is a Fellow of the Gerontological Society of America and 2024 awardee of the Maxwell A. Pollack Award for Contributions to Healthy Aging, which recognizes an individual who has distinguished themselves by bridging the worlds of research, policy, and practice. He is Editor-in-Chief of the Journal of Aging & Social Policy.

Introduction-Where We Are Now: The State of Family Caregiving Policy 1. Effects of California's Paid Family Leave Law on Caregiving by Older Adults 2. Paid Leave to Meet the Health Needs of Aging Family Members in 193 Countries 3. A Community Initiative to Engage Employers to Support Caregiving Employees and Build an Advocacy Alliance 4. What do Family Caregivers Want? Payment for Providing Care 5. Caregivers' Absenteeism and Its Association With Health Shocks and Functional Impairment Among Persons With Severe Dementia 6. The Relationships Between Informal and Formal Social Care for Older People in England: A Comparison Before and After the Care Act 2014 7. Family Support, Perceived Physical Activeness and Chronic Non-Communicable Diseases as Determinants of Formal Healthcare Utilization Among Older Adults with Low Income and Health Insurance Subscription in Ghana 8. Improving Transitions in Care for Patients and Family Caregivers Living in Rural and Underserved Areas: The Caregiver Advise, Record, Enable (CARE) Act 9. Family Caregivers as Employers of Migrant Live-In Care Workers: Experiences and Policy Implications 10. Older Caregivers: Who They Are and How to Support Them 11. The Economic Value of Caregiving in Chile 12. Informal Caregiver Social Network Types and Mental Health: The Mediating Role of Psychological Resilience 13. Leveraging Existing Datasets to Advance Family Caregiving Research: Opportunities to Measure What Matters

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