Genetic Governance

How is genetic research governed? And how will the new genetics govern our lives? There is much interest in the potential transformation of life and new therapeutic opportunities brought about by the so-called genetic revolution. Genetics is increasingly involved in processes of governance that determine the way we see our bodies, ourselves and our environments. Controversy and ethical debate surrounds the use of techniques of human cloning, stem cell research and the use of national genetic databases or 'bio-banks'. There has been little reflection on the effects of this new genetic knowledge and the changes in practice that are currently impacting on our lives. "Genetic Governance" contains contributions from key international researchers who examine the broader issues of genetic debates, look at how prediction and risk assessment is being changed in the arenas of health, medicine and reproduction, and bring new insights on the dangers of surveillance, regulation and increased inequality. This book considers the implications of developments in genetics for contemporary liberal governance, as well as for the future of healthcare and public health. This book will be invaluable reading for academics and students in health studies, public health, medical ethics, medical sociology and governance.

Robin Bunton is Professor of Sociology at the University of Teeside. He has previously worked as a researcher and practitioner in the public health field and published widely in the sociology of health. Alan Petersen is Professor of Sociology at the Univeristy of Plymouth. He has researched and published widely in the sociology of health and illness, and more specifically in the sociology of the new genetics.

Section 1: Introduction: Genetic, Governance, and Ethics Section 2: Ethics, Risk and Governance 1. Ethics of Clinical Genetics: The Spirit of the Profession and Trials of Suitability from 1970 to 2000 2. Risk Management and Ethics in High-Tech Antenatal Care: The Finnish Experience 3. The First Genetic Screening in Finland: Its Execution, Evaluation and some Possible Implications for Liberal Government 4. Choice as Responsibility: Genetic Testing as Citizenship through Familial Obligation and the Management of Risk Section 3: Risk, Population and Identity 5. From Eugenics to the Government of Genetic Risks 6. The Sociology of the New Genetics: Conceptualising the Links Between Reproduction, Gender and Bodies 7. Who's Right to Choose? The New Genetics, Prenatal Testing and People 8. 'New' Genetics Meets the Old Underclass: Findings from a Study of Genetic Outreach Services in Rural Kentucky Section 4: Knowledge, Goverance, and the Future 9. Public Health And The `New Genetics': Balancing Individual And Collective Outcomes 10. More Than Code: From Genetic Reductionism To Complex Biological Systems 11. Emerging Forms of Governance in Genomics and Post-Genomics: Structures, Trends, Perspectives

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