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Pediatric Palliative Care: A Model for Exemplary Practice lays out a road map for health-care providers interested in optimizing care for seriously ill children and their families. Grounded in clinical practice and the study of positive rather than problematic encounters between providers and parents, the book presents an evidence-based model of exemplary interaction. The chapters offer a clear understanding of the complex, holistic process of interaction between providers and parents, as well as the personal and professional knowledge and skills needed to interact in optimal ways. This is a one-of-a-kind guidebook for health-care providers interested in (re)discovering how to maximize positive outcomes for both families and providers. It is also a valuable source of inspiration for educators, supervisors, and hospital administrators who want to facilitate personal and professional development and create supportive environments for students, providers, seriously ill children, and their families.
Betty Davies, MSN, PhD, is an adjunct professor in the School of Nursing, University of Victoria, British Columbia, Canada, and professor emerita in the Department of Family Health Care Nursing at the University of California, San Francisco, USA. Rose Steele, RN, PhD, is a full professor in the School of Nursing, Faculty of Health, York University, Toronto, Ontario, Canada. Jennifer Baird, RN, MPH, MSW, PhD, is the director of Clinical Services Education and Research at Children's Hospital Los Angeles, California, USA.
1. Introduction to interaction 2. Metaphor and Overview of Model of Exemplary Interaction 3. Worldview, Values, and Commitment to Authentic Engagement 4. Process of Attuning 5. Direct Care Activities 6. Connecting Behaviors 7. Personal Influencing Factors 8. Pediatric Health-Care Provider-Parent Relationship 9. Setting and Teamwork Contextual Factors 10. Institutional and Societal Contextual Factors 11. Output From Exemplary Interaction: A Milieu of Mattering 12. Implications of the Model of Exemplary Interaction
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