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This groundbreaking book makes it clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics and the reshaping of current practices in governance.
Herbert Gottweis is Professor in the Department of Political Science at the University of Vienna, Austria. Alan Petersen is Professor of Sociology, School of Political and Social Inquiry, Monash University, Melbourne, Australia. He is also an Honorary Visiting Professor at Plymouth University and at City University in London, UK.
Part 1: Conceptualising biobanks 1. Biobanks and governance: an introduction 2. Biobanks in action: new strategies in the governance of life Part 2: How to build a biobank: comparing different approaches 3. The rise and fall of a biobank: the case of Iceland 4. Estonia: ups and downs of a biobank project 5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank 6. 'This is not a national biobank...': the politics of local biobanks in Germany 7. Governing DNA: prospects and problems in the proposed large United States population cohort 8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan Part 3: Biobanks, publics, and citizenship 9. UK Biobank: bioethics as a technology of governance 10. Biobanks and the biopolitics of inclusion and representation 11. The informed consenters: governing biobanks in Scandinavia 12. Framing consent: the politics of 'engagement' in an Australian biobank project 13. Governing through biobanks: Research populations in Israel
