Leadership for Intellectual Disability Service

People with intellectual disability often experience challenges in their lives. These may be due to difficulties in social adaptation, but may also be related to a reality of disempowerment whereby they have little role in the decisions central to their lives or in the provision of health, educational and social services. This book argues for alternative and innovative approaches to leadership in intellectual disability service provision. It does this in the light of service scandals including Winterborne View (UK), Oswald D. Heck (USA), Áras Attracta (Ireland) and many others. This book also explores the failed leadership issues underpinning such debacles and then examines how the context for intellectual disability service provision has changed. The authors propose alternative models for service leadership that are contiguous with the changed landscape, emphasizing participatory models of leadership and ending with exemplary vignettes outlining situations where such innovative change is happening.

Dr. Elizabeth A. Curtis School of Nursing and Midwifery, University of Dublin, Trinity College Dublin, Dublin 2. Ireland. Elizabeth is a member of the academic team in the School of Nursing and Midwifery, Trinity College Dublin. She qualified as a general nurse in London and worked in the discipline of neurosciences in the National Health Service (NHS). Her research interests are varied and include job satisfaction and leadership. Published books include Research Success in Nursing and Health Care: A Guide to Doing Your Higher Degree (2008), Delegation: A Short Primer for the Practicing Nurse (2009), Quantitative Health Research: Issues and Methods (2013) and Leadership and Change for the Health Professional (2017). Five years ago, Elizabeth set up a Leadership Network Group to promote and expand work on leadership in nursing. curtise@tcd.ie Dr. Fintan Sheerin School of Nursing and Midwifery, University of Dublin, Trinity College Dublin, Dublin 2. Ireland. Fintan is Associate Professor in and Head of Intellectual Disability Nursing at the School of Nursing and Midwifery in Trinity College Dublin. His research has largely focused on engagement, accessibility and well-being, seeking to address the issues which impact on both. He leads the mental health component of IDS-TILDA and is guiding the analysis of data gathered to date and exploring the future focus of data in that regard. Fintan is a social activist in respect of various groups of people who find themselves on the margins of society. He was the consultant to the Irish RTÉ television documentary, Inside Bungalow 3, which exposed abuse of people with an intellectual disability at Áras Attracta leading to successful prosecutions. He has published widely, spoken at many international conferences and has contributed to a number of books. He is a Fellow of the European Academy of Nursing Science. sheerinf@tcd.ie

Contents Preface.................................................................................. vii Acknowledgements............................................................xiii Contributors........................................................................ xv Section I BACKGROUND AND CONTE XT 1 Leadership and Intellectual Disability Services.......3 FINTAN SHEERIN 2 Moving Models: Leading Through Constant Change....................................................................23 RUTH NORTHWAY Section II LEADERSHIP FOR IMPROVIN G AND ENE RGISIN G 3 Distributed Leadership - An Alternative Approach for Intellectual Disability?......................47 ELIZABETH A. CURTIS 4 The Role of Leadership and Motivation During Change.......................................................85 PATRICK RYAN AND MORGAN DANAHER 5 The Psychology of Leadership..............................113 CHRISTINE LINEHAN Section IIIINNO VATIN G THROUGH CHANGE 6 Beyond Controversy in Change Management? Rethinking Options for Intellectual Disability Services.................................................................139 MARTIN BEIRNE 7 Achieving Change Through Grassroots Education and Leadership....................................163 MARIA PAIEWONSKY AND DEBRA HART Section IV APPLICATION 8 Leadership in Practice: Four Participatory Vignettes...............................................................191 COLIN GRIFFITHS Index .................................................................................. 211