Routledge Handbook of Genomics, Health and Society

The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research. Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary 'bioeconomies'; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs - and is shaped by - developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research. Chapters 13 and 28 of this book are freely available as downloadable Open Access PDFs at http://www.taylorfrancis.com, under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.

Sahra Gibbon is Reader in Medical Anthropology in the Anthropology Department at University College London, UK. Barbara Prainsack is a Professor at the Department of Political Science at the University of Vienna, Austria, and at the Department of Global Health & Social Medicine at King's College London, UK. Stephen Hilgartner is Professor of Science & Technology Studies at Cornell University, USA. Janelle Lamoreaux is Assistant Professor of Anthropology at University of Arizona, USA.

1 Introduction: Genomics, Health and Society. Section One: Genomic/DNA-based Technologies in the Clinic and Beyond, 2 Introduction, 3 Biomedicalisation in the Postgenomic Age, 4 Genomics and Big Data in Biomedicine, 5 Mainstreaming Genomics and Personal Genetic Testing, 6 Bringing Genetics into the Clinic: The Evolution of Genetic Testing and Counselling, 7 From Quality Control to Informed Choice: Understanding "Good Births" and Prenatal Genetic Testing in Contemporary Urban China. Section Two: Genomic Technologies in the Bioeconomy 8 Introduction, 9 Limits to Biocapital, 10 Gendered Bioeconomies, 11 Genomic Hope: Promise in the Bioeconomy, 12 Neoliberalism on Drugs: Genomics and the Political Economy of Medicine, 13 The Value of the Imagined Biological in Policy and Society: Somaticizing and Economising British Subject(ivitie)s, 14 Responsible Research and Innovation (RRI). Section Three: Current Challenges in the Governance of Medical Genomics, 15 Introduction, 16 The Human Genome Project and the Legacy of its Ethics Programs, 17 Patenting, 18 Genomic Platforms and Clinical Research, 19 Diagnostics, 20 Collection and Protection of Personal Health Data, 21 In CRISPR's World: Genome Editing and the Politics of Global Science. Section Four: Diversity and Justice, 22 Introduction, 23 Disability and the Challenge of Genomics, 24 Eugenics and Enhancement in Contemporary Genomics, 25 Genomics and Insurance, 26 Power Asymmetries, Participation, and the Idea of Personalised Medicine, 27 Excavating Difference: Race in Genomic Medicine, 28 Genomics in Emerging and Developing Economies. Section Five: Crossing Boundaries, 29 Introduction, 30 Epigenetics, 31 Environmental Epigenetics and Suicide Risk at a Molecular Scale, 32 Stem Cells, Global Cells, Local Cultures, 33 Co-producing Animal Models and Genetic Science, 34 Making Microbiomes, 35 Behavior Genetics: Boundary Crossings and Epistemic Cultures, 36 Synthetic Biology