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Though the tremendous amount of recently-emerged developmentally-oriented research has produced much progress in understanding the personality, social, and emotional characteristics of persons with intellectual disabilities (ID), there is still much we don't know, and the vast task of precisely charting functioning in all these areas, while also identifying the associated fine-tuned, complex, and intertwined questions that crop up along the way, seems daunting and insurmountable. The goal of The Oxford Handbook of Intellectual Disability and Development is to update the field with new, precise research and sophisticated theory regarding individuals with ID provided by seasoned developmental theorists who have made original conceptual contributions to the field. This volume is divided into five general sections (ID and its connection to genetics, relationships, cognitive development, socio-emotional development, and development of language), with each focused on a domain of functioning or aspect of life that is inherent to an integrated, transactional perspective of development. While developmental approaches to understanding persons with intellectual disability will continue to emerge, this comprehensive volume is a must-read for specialists and developmental psychologists who must have the conceptual foundations for examining the developmental trajectories across persons with any of the many different ID etiologies.
Jacob A. Burack, Ph.D., is Professor of School/Applied Developmental Psychology and Human Development in the Department of Educational and Counselling Psychology at McGill University, Director of the McGill Youth Study Team (MYST), and a researcher at Hôpital Rivière-des-Prairies.
Robert M. Hodapp, Ph.D., is a Professor of Special Education in the Department of Special Education at Vanderbilt Peabody College and Director of Research at Vanderbilt University Center for Excellence in Developmental Disabilities.
Grace Iarocci, Ph.D., is Associate Professor of Developmental and Clinical Psychology in the Department of Psychology at Simon Fraser University, a Michael Smith Foundation for Health Research Scholar, and Director of the Autism and Developmental Disorders Lab at SFU.
Edward Zigler, Ph.D., is Sterling Professor of Psychology (Emeritus) at Yale University, founder and Director Emeritus of Yale's Edward Zigler Center in Child Development and Social Policy. He is a member of the Institute of Medicine and the American Academy of Arts and Sciences. In the 1970's, he was the founding Director of the U.S. Office of Child Development (now ACYF) and Chief of the U.S. Children's Bureau.
Part One: Introduction and Overview
1. The More You Know the Less You Know, But That's OK: Developments in the Developmental Approach to Intellectual DisabilityJacob A. Burack, Natalie Russo, Heidi Flores, Grace Iarocci, and Edward Zigler
Part Two: Genes and Behavior
2. Behavioural Genetics, Genomics, Intelligence, and Mental RetardationGrace Iarocci and Stephen A. Petrill
3. The Contribution of Developmental Models towards Understanding Gene-to-Behavior Mapping: The Case of Williams SyndromeMayada Elsabbagh & Annette Karmiloff-Smith
4. Linking Genes to Cognition: The Case of Fragile X SyndromeKim M. Cornish, Armando Bertone, Cary S. Kogan, and Gaia Scerif
Part Three: Cognitive Development
5. The Organization and Development of Spatial Representation: Insights from Williams Syndrome Barbara Landau
6. Understanding the Development of Attention in Persons with Intellectual Disability: Challenging the MythsGrace Iarocci, Mafalda Porporino, James T. Enns, and Jacob A. Burack
7. Memory and Learning in Intellectual DisabilitiesStefano Vicari
8. Short-Term Memory and Working Memory in Mental Retardation Christopher Jarrold and Jon Brock
9. Executive Function across Syndromes Associated with Intellectual Disabilities: A Developmental PerspectiveNatalie Russo, Tamara Dawkins, Mariëtte Huizinga, and Jacob A. Burack
10. Musical Ability and Developmental DisordersAnjali K. Bhatara, Eve-Marie Quintin, and Daniel J. Levitin
11. Brain-Based Methods in the Study of Developmental Disabilities: Examples from ERP and MRI ResearchAlexandra P.F. Key and Tricia A. Thornton-Well
Part Four: Language Development
12. Language Development in Childhood, Adolescence, and Young Adulthood in Persons with Down SyndromeRobin S. Chapman and Elizabeth Kay-Raining Bird
13. Literacy Development in Childhood, Adolescence, and Young Adulthood in Persons with Down SyndromeElizabeth Kay-Raining Bird and Robin S. Chapman
14. Language Development in Fragile X Syndrome: Syndrome-Specific Features, Within-Syndrome Variation, and Contributing FactorsLeonard Abbeduto, Andrea McDuffie, Nancy Brady, and Sara T. Kover
15. Language Development in Williams SyndromeCarolyn B. Mervis
Part Five: Social-Emotional Development
16. Emotional Development in Children with Developmental DisabilitiesConnie Kasari, Laudan Jahromi, and Amanda Gulsrud
17. Socio-emotional and Brain Development in Children with Genetic Syndromes Associated with Developmental DelayAlison Niccols, Karen Thomas, and Louis A. Schmidt
18. The Assessment and Presentation of Autism Spectrum Disorder and Associated Characteristics in Individuals with Severe Intellectual Disability and Genetic SyndromesJoanna Moss, Patricia Howlin, and Chris Oliver
Part Six: Family and Context
19. Family Well-being and Children with Intellectual DisabilityLaraine Masters Glidden
20. Dyadic Interaction between Mothers and Children with Down Syndrome or Williams Syndrome: Empirical Evidence and Emerging AgendasPenny Hauser-Cram, Angela N. Howell-Moneta, and Jessica Mercer Young
21. Parenting and Mental Retardation: An attachment perspective Rinat Feniger-Schaal, David Oppenheim, Nina Koren-Karie, and Nurit Yirmiya
22. Children with Down Syndrome: Parents' PerspectivesMichal Al-Yagon and Malka Margalit
23. Child Eliciting Effects in Families of Children with Intellectual Disability:Proximal and Distal PerspectivesDeborah J. Fidler
24. Life Course Perspectives in Intellectual Disability Research: The Case of Family CaregivingAnna J. Esbensen, Marsha Mailick Seltzer, and Marty Wyngaarden Krauss
Part Seven: Conclusions and Future Directions
25. On Knowing More: Future Issues for Developmental Approaches to Intellectual DisabilitiesJacob A. Burack, Robert M. Hodapp, Grace Iarocci, and Edward Zigler
Index
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